For the past few days, I've been accompanying my almost one-year old baby Charlie to a dizzying array of pre-op appointments in preparation for his craniofacial surgery tomorrow. As many of you know, Charlie is a stroke survivor and also has a bone condition called Craniosynostosis. This is when two or more skull bones fuse prematurely in the womb essentially trapping the brain and restricting growth. Tomorrow morning, my husband and I will take Charlie to Medical City here in Dallas for a procedure called a cranio vault. They are going to open the fuse, dismantle the skull in sections and then put it all back together like a big jigsaw puzzle.
Since I won't be able to hold Charlie for a few days, I've been packing him around with me every place I go. He has been either in my arms, in my lap or in my bed sleeping in my arms. So, I guess it would be more accurate to say that I've gained 23 pounds of Charlie weight this week. I'm nervous and a little bit terrified at the thought of handing my child over to the hands of surgeons tomorrow, but I'm confident that this will all be well in the end. I just keep repeating - all will be well, all will be well, all will be well.
Pounds lost this week: 0
Total pounds lost: 14
Me and Charlie after an appointment with his neurosurgeon. |
To learn more about Charlie click HERE.
2 comments:
Sarah sending you strength.
Hi Sarah,
I just wanted you to know I'm keeping focused on positive thoughts for Charlie today! Thinking of you,
Mary Jo
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